The problem targeted by the project is the slow pace of development of palliative care for children in Ukraine. There are still no approved standards for palliative care for children. Significant problems are the lack of normative and legal documents defining a palliative patient who is a child, low level of knowledge of doctors regarding the provision of palliative care for children, lack of understanding of the importance of the problem on the part of the authorities.
Palliative care for children is developing in Ukraine extremely unevenly. While in the Ivano-Frankivsk, Vinnytsya, Kharkiv and Volyn oblasts palliative care is recognized as a priority area for the development of the medical sector, in other oblasts (for example, Zhytomyr, Kherson, etc.), the need to provide palliative care to children is not recognized at all. The main driving force behind the promotion of palliative care in the regions is community activists and activists from the medical community. Bright examples of this are Ivano-Frankivsk, Kharkiv, Rivne, Volyn and Vinnytsia oblasts. One of the most important factors contributing to the rapid development of this area is the unification of efforts of civic activists, non-indifferent representatives of the medical community and progressive representatives of the government. The quality and speed of the development of palliative care in Ukraine directly depends on the effectiveness of the interaction of the above branches, as well as on the possibility to study international experience for its further adaptation and implementation.
Conducting the International Forum on Children Palliative Care, created a powerful opportunity for constructive dialogue between community activists, doctors and government officials, gave an opportunity to get acquainted with the best international practices and best Ukrainian practices regarding the provision of palliative care for children, to jointly identify strategic priorities for the development of palliative care for children in Ukraine.
In total 150 people took part in the event.
Representatives from each oblast were invited to participate in the selection process. A competitive selection of forum participants was held. 150 people were selected. Among them are representatives of government agencies, medical community and community activists.
Foreign experts were invited to participate in the presentation of successful foreign practices. Among them: Joan Marston - Executive Director of The International Children’s Palliative Care Network (ICPCN).
Following speakers were invited to the Forum:
- Medical practitioners who provide palliative care to children from Lviv, Vinnytsia, Ivano-Frankivsk, Kharkiv and other cities.
- Representatives of Health Departments, medical institutions and public organizations that are already implementing best practices regarding the provision of palliative care for children.
The forum lasted for two days and was held in Kyiv.
Ministry of Health, Office of the Ombudsperson of the Verkhovna Rada for Human Rights, Office of the Ombudsperson of the President on Children's Rights, Charitable Foundation "Mother Teresa", Ukrainian-German Medical Association, CF "Hippocrates", CF "Sobornist" and others.
Event in other sources: